A year ago today was a day from hell, literally, hell. We just finished another horrible dilation in Dr.Kuhn's office and had a big pow-wow with everyone saying that Emma needed a colostomy and another PSARP b/c she wasn't healing up from her surgery (the biggest DUH inserted here). I know after that appointment I puked in the bathroom with the door wide open for everyone to see and ask if I was okay. No, I wasn't okay-I felt like the world was crashing down all on top of me and Emma was coming along for the ride. I had to pull it all together because I had to meet with her geneticist for her yearly checkup. I think I had the mini-nervous breakdown in between her weight and height check (3% on both) and when the genetic counselor came in. I don't even know how I made it through that appointment. I cried all the way home, cried until Chad came home, cried over the thought of having to do this all over again. It was simply surreal that night.
But what started as the day from hell ended with these words from Dr.Levitt "Sure I would be happy to help you". Our saving grace. I got an email response in less than 1/2 hour.....simply amazing. In less than 3 months, she had her surgery in Ohio.
And now a year later, a new butt later, she is 28.5lbs and 36 inches tall (60% baby!). What a difference a year can make.