Mostly about Emma with some bits about mom and dad's life too!
Laura, I think you've got it. By the way, Zachary will only eat carbs and dairy lately and we have had to move his LT up to 4.0mls! Yikes!!! He is SO picky. I am hoping with encouragement, he will eat more well rounded. Hugs to you!!!!
I saw a link to your website on another page. It caught my eye because your little girl's name is Emma Rose and so is my little girl's name.Our Emma has Fanconi anemia (FA), which is something that is often diagnosed after the diagnosis of VACTERL (though there are plenty who prove to not have FA).Your Emma is a beautiful girl...and what a pretty name;-)
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