Wednesday, March 26, 2008

Happy birthday to the mama!



Yup, turned 31 today-Yikes! My parents sent me a "cake" of flowers which I thought was pretty darn cool. I haven't seen something like this before and the candles were included in the box-but I don't think I am going to be lighting candles anytime soon LOL



Went to Red Robin for lunch 'cause they give you a free burger if you sign up for their birthday club. I also have a coupon for Cold Stone Creamery too so after we go to the pedi's office for an ear check, we are off to get ice cream. Nothing like having a birthday to sabbatoge the diet right?

And the birds are sticking with the nest on our front door. It's grown in size since my last post and I guess the birds are okay with us opening and closing the front door.

Gotta run-diaper change on Em and then we are out the door!

Friday, March 21, 2008

the crazy birds


Oh yeah-we have a pair of birds living in the Easter wreath on our front door. My mom made it for us last year and we didn't have any residents until this week. The other day, I thought I heard pecking on our front door. Then I just dismissed it as too little sleep and I was hearing things. Yesterday though, I heard the knocking again and I look out the peep hole and sure enough, some big 'ol bird is staring back at me with nesting material in its beak.


And he/she kept flying back and forth from the door to the woods, bringing stuff back. And then another bird flew up, the other half, and started to peck on the door. Fun times right? I looked up the bird and it's a Carolina Wren: http://identify.whatbird.com/obj/677/_/Carolina_Wren.aspx
The cat is going nuts because the birds and flying back and forth and he is perched up on the couch just looking out the window waiting.....

Tuesday, March 18, 2008

Could the virus really be gone?

Ugh-she puked 2x on Sunday (one all over and in her favorite toddler play table toy that will end up in the garbage) and once yesterday all over our living room floor but today....NO PUKE! It's been over 24 hours since her last episode and we haven't gone that long yet since being off the anti-puking meds.

Yikes- I was beginning to think she has something really wrong with her (mind going crazy with ideas) but it is just a really really nasty virus that I don't want to see again anytime soon. I Lysoled our entire house to kill the little buggers so now our house smells like the hospital but at least it is clean :)

It's been challenging for us since Emma and I have been home. She gets frustrated pretty easily and when she doesn't get her way or we don't understand WHAT she wants, it's tantrum city. She also has started hitting herself on the forehead when she gets like this which is disturbing to us. She has her group PT class on Thursday so I will ask one of them what is going on with her. The hospital social worker said it will be a "transition" from the hospital to home and once her normal routine is back into place, things will calm down. She's like a time bomb now so I am hoping this transition thing happens sooner than later.

I will upload some pictures tomorrow but now it's time to put the sleeping girl to bed-she missed a nap today and she is finally snoozing her on the floor-

Saturday, March 15, 2008

Home Sweet Home!

After a 3 hour delay at the airport due to fog, we FINALLY made it back home today, 20 days after we left.

It has been an eventful week- Emma started vomtting on Wednesday morning and by Friday, we ended up in the ER all day getting her re-hydrated. It was a monster of a stomach bug and they ended up giving her Zofran to stop the vomiting. That is the anti-nausea drug prescribed typically for chemo patients-it was pretty bad. On top of that, the doctor found that she had an ear infection that was partially causing her to be sick (poor kid)! After a round of antibiotics and 2 IV bolus of fluids later, we were on our way home to back. Emma slept from 1pm on Friday to 6:00am today-she was feeling so lousy and I was so relieved that the drugs enabled her to catch up on her rest. She is on Augmentin until the end of next week to clear up the infection.

The good thing about Friday is Dr.Levitt said everything looked great-dilation went GREAT and we are not due back to Ohio until September for a check-up.

We missed out on going to the aquarium and children's museum but hopefully we will hit those places next time.

Blah, I feel sick now so I am going to bed!

Wednesday, March 12, 2008

Still here.....



I feel like we have been living here at the RMH for weeks-I am ready to get out and go home! We spent all day Saturday and Sunday holed up here b/c of the snow and Emma spent the weekend pushing the shopping cart all over the house. It's a HUGE house with 2 floors so she had plenty of room to run.

Monday we ventured out, went to the mall, got some new flip-flops from JCrew and mascarra from Sephora (which I LOVE LOVE LOVE this store) and a pretty dress for Emma at Macy's.

Tuesday we went down to Kentucky to visit my friend Amber and her daughter, Kyleigh. Ky also has VACTERS and it was such a blast to finally hang out with them in person. Amber is a fantastic photographer and took some amazing pictures of Emma. This is her blog where they are posted http://the-family-schmidt.blogspot.com/ God has put amazing strength into both of these ladies- Amber inspires me to do more and give more. She and a group of others started a non-for-profit organization that you can read about more on her blog. When she sleeps I have no idea!

Wednesday, today, my daughter starts puking at 2 am and didn't stop until close to 9. My parents are here, and they got us some pedilyte to calm things down and stuck around here until we woke up from a 2 hour nap. Then we did something fun- we went to the zoo! I got some cools pics of the animals but I got a really good one of Emma here hanging out in her stroller.
I love how blue her eyes look in this picture. She wasn't all too interested in the animals but she had fun nontheless running around the park. Then we hung out at the RMH where I attempted to insert my SD card into the slot on my laptop AND IT DIDNT GO IN. You want to know why? It's because somehow, sometime ago (prior to last week), my darling daughter shoved not only a dime into the slot but a penny too!!!! I about had a meltdown and was about to plunk the computer down on the floor when thankfully my dad came in the room and got the penny out (I had somehow manged to get the dime out with my fingernail file). What a day! Anyway, I hope everyone has a great rest of the week and keep your fingers crossed that Dr.Levitt gives us the okay to leave here on Saturday!

Saturday, March 8, 2008

We are at the RMH!

First it was going to be Monday, then Sunday and then Dr. Levitt came by yesterday and said Saturday is the day- let Emma eat and be discharged! And so we ate some egss and hashbrowns by 7am and had some JUICE finally. Emma didn't skip a beat and thank GOD she didn't reject the food or drink from being without for the past 12 days. And wouldn't you know....a blizzard hits Cincy and dumps over a foot of snow on us. RMH came and picked us up, got us all settled in and now we are relaxing-Emma is sleeping finally at 8:30 and I can update and check emails. What a day! I tomorrow is going to be hanging out day...wait, we have been hanging out since like, last Saturday. Emma has never been in the snow before so if it warms up, I will have to bundle her up and let her play in the snow for about 5 minutes :)

We are planning a trip to KY to see Amber and Kyleigh on Tuesday so Ky and Emma can finally meet and have a playdate. Wednesday my parents are here so we'll be doing some fun tourist stuff until Friday. It feels FANSTASTIC to be out of the hospital and to think I can sleep in a real bed, in a bedroom without monitors, nurses or the sounds of dinging alarms in the middle of the night. Bliss I tell ya!


Tuesday, March 4, 2008

i think tomorrow is the day







Tomorrow is the day we find out if Emma needs to go back to the OR to have some more stitches put in-Dr. Levitt will take a really good look at her behind and decide if she gets to go on the schedule for Thursday. Good news is he came in today and took a look ( I of course was not here, I was e-a-t-i-n-g downstairs) but said things look fantastic. I am keeping fingers and toes crossed that maybe, just maybe, we'll be able to leave the hospital later on this week. If she goes back to the OR, we'll be here until next Monday :(

Great news- we got in at the Ronald McDonald House across the street which is AWESOME. I had a different picture of what it was going to be like and I was so WRONG. For us to stay, its' $20 a night and includes breakfast and dinner provided by volunteers. They have a pantry the size of our condo with anything you could imagine is in there. There are also 8 freezers/fridges. Two are help yourselves- if there are leftovers from any meals, you are welcome to take them. Our room is at the end of the hall, upstairs and is quite nice.

Here are some pics of Emma- the first is her out of surgery, the second is her looking at her leads and the last one is her playing, having fun.