Tuesday, January 29, 2008

Umm do you think she should be playing with that?

I am in the shower and Emma escapes from our bathroom. Chad was upstairs and the baby gate was closed so I yell from the shower to make sure he is watching her. Turn off water, wait for reply. Clean and dressed, Emma waltzes into our bedroom with an empty square candy tin (no lid) and she is having a ball shaking it up and down because it's making noise- like the sound of coins in a metal can noise. I take the can from her and in it are 3 pennies! PENNIES?! Are you out of your mind daddy?!!!?? She not only can choke on them, but her anus isn't big enough to pass the penny through!!!! The LAST thing we need is a penny impacted in my daughter's colon a month out from surgery. Daddy replaces the pennies with big square plastic paper clips-I guess this was a better alternative but come on, she has other things to play with!

Good news from Dr.Kobak-esophagus DOES NOT LOOK STRICTURED! Yippee!!!! We have a follow up appointment in May but for now, no surgical dilation. He also said it didn't look like there was any reflux present either so she continues to be reflux medicine free. Obviously if she starts puking/burping a lot/choking on a daily basis, we'll have to do another upper GI but I am relieved that something is going right for her this year.

We also had our quartly evaluation with our infant program-Emma still qualifies for services because some of her gross/fine motor skills still aren't up to par. Her hand stuff is only at a 13-14 month old level. Since she only crawled for about 3 months, she doesn't like holding/grasping a lot in her hands, like crayons, spoons,blocks and this is part of the late crawling start and lack of it. We will have to work on the texture thing some more with her. She also doesn't imatate sounds or point to things in a book and tell me what it is. Our classes will work on that so next Thursday, we are back to 1x a week down at the beach doing our OT work :) It really helped this past fall and got her walking earlier and eating better. And best of all, it's FREE through the city of Virginia Beach. Love it!!!!

Monday, January 28, 2008

All in all, not a bad Monday

We got off to a great start today. Our annual upper GI was today. Out of the house by 6:45 am, at CHKD by 7:30, first one to sign in and then....we waited. 8:30 came and went and I asked when was she going to be taken back for the upper gi. 8:45-finally but wait.....more waiting this time outside the room the test was going to be done. 9:15 they call us in and the nurse tells me to put Emma on the table so we can get started because they are a little behind. Okay...but are you ready to start? She said yes, the doc is in the next room. Emma on the table, 5 minutes later, Emma hysterical, (the nurse was out of the room by then), no doc and now I am ticked. I picked Emma up and she came back in to ask why I was holding her. Well DUH obviously you weren't ready, she is upset and now we might have to reschedule if she doesn't calm down. Finally, the doc comes in and I ask AGAIN, are you ready? I want to see the barium flavored juice in the sippy cup and the Xray machine turned on. Once I saw all of this done to my satisfaction, then I laid Emma back down (they strap you to a board) and the test began. And she screamed, and puked, and choked and would not take the cup. Barium is all of me, all in Emma's hair and I am silently begging to her to please, please just take 1 or 2 really good sips so we can see if your esophagus is getting smaller. 35 minutes later, we are done and then it was off to see Dr.Kuhn and proceded to wait some more. We didn't get home until after 11am so our morning was gone.

Good news, it's not, well at least from what I can tell and the radiology tech in the room reading it as the test is going on. I will have to call Dr.Kobak tomorrow to make sure that everything looks okay. If there is some narrowing and depending on how much, he'll either wait and do this again next year or we'll be in the OR doing an dilation later on in the spring.

Saturday, January 26, 2008

Just to see you smile

I love Emma's smile. It feels so good to finally see her smiling, laughing and enjoying life. Today she was a crazy pony-tailed girl, running around in the play area of the mall having a great time. I want her to remember these days, not the days full of medical procedures, not the hospital stays and not the scary loud machines running tests.
Today was one of those days I wished we had more often.

I want her to have as much fun as humanly possible because she missed out on having fun for such a long time. She and I cried so much during her first year of life that I feel obligated to give her days like these as much as I can. She deserves to be happy, to be pain-free, to simply be a kid.

Friday, January 25, 2008

The lot







As if we needed anymore stress in our lives, we talked to a realtor last week about buying a new home, since our little condo isn't big enough for us anymore. It's a great time to buy and we finally are making enough money to afford a real house.


Last Saturday, at my SIL house, her husband said why not have him build our house (he is a builder/fencer/you name it) and buy one of their lots.....well it looks like Scott is building us a house on a very nice lot out in Chesapeake. We haven't gotten approval for the loan yet since our taxes are not done but we are going to get a contract out on the lot and hopefully start building in the spring. The lot is HUGE with a view of a lake from the "second floor". You can't find lots like this down here anymore for the cost he is selling us. We are keeping our fingers crossed that it works out for us. The action won't really start until after we get back from Ohio and the house will probably start going up later on in the spring. We haven't decided if we are going to rent/sell the condo until spring so we can see what the demand is going to be for selling/renting in our area. Selling isn't happening now and neither is renting but it's winter here so maybe this spring things will pick up!

The waiting game....

Still no word from Cincy when we need to be there. I am almost getting slightly annoyed by this fact since her surgery date is 1 month from Monday. Chad is on my be-hind about getting a date and hopefully the email I sent today will do the trick.

Sunday, January 6, 2008

Blogging

I should be sleeping or trying to get to sleep before Emma wakes up. I finally realized I need to stop writing so many emails about what is going on and just blog it and whoever wants to can stay updated.

With Emma's upcoming surgery in Cicny, I want to keep everyone posted on our doings and happenings between now and then. I "should" have internet access there so I can update about the surgery but we shall see.....