Thursday, December 4, 2008

A year ago today.....

A year ago today was a day from hell, literally, hell. We just finished another horrible dilation in Dr.Kuhn's office and had a big pow-wow with everyone saying that Emma needed a colostomy and another PSARP b/c she wasn't healing up from her surgery (the biggest DUH inserted here). I know after that appointment I puked in the bathroom with the door wide open for everyone to see and ask if I was okay. No, I wasn't okay-I felt like the world was crashing down all on top of me and Emma was coming along for the ride. I had to pull it all together because I had to meet with her geneticist for her yearly checkup. I think I had the mini-nervous breakdown in between her weight and height check (3% on both) and when the genetic counselor came in. I don't even know how I made it through that appointment. I cried all the way home, cried until Chad came home, cried over the thought of having to do this all over again. It was simply surreal that night.

But what started as the day from hell ended with these words from Dr.Levitt "Sure I would be happy to help you". Our saving grace. I got an email response in less than 1/2 hour.....simply amazing. In less than 3 months, she had her surgery in Ohio.

And now a year later, a new butt later, she is 28.5lbs and 36 inches tall (60% baby!). What a difference a year can make.

Thursday, November 20, 2008

Thanks Mindy!

I love the new background, courtsey of, which I found off of Mindy's blog :)

Time to start waking Emma up-we are going to see Madagascar II....should be fun!

Wednesday, November 19, 2008

Emma's new glasses

Wow, back to back posts! Well here are some pics for ya'll!

Tuesday, November 18, 2008

Its not cancer-YAY!

If you are not into reading TMI.....I would stop now!

Anyway, my breast biopsy came back negative for cancer. Yes, cancer. I had some weird things going on with my left boob/nip area and my gyn wasn't too concerned. I however, was, because this is the same boob that had a lovely tumor removed from it in 2002, in the same area where the tumor once had a lovely home. My gyn said fine, lets get you in with the surgeon.

Last week, I saw Dr.Stewart. She talked to me first before examining me and I read in her face..."she is a silly girl here over some rash that probably isn't anything". Fine lady, wait till you see it. And when she did, her demeanor changed which in my world, is bad news. And the ever so famous words which I heard from a breast surgeon back in OKC...."I can't be certain that it is not cancer without some additional tests" (i.e. involving stitches, needles and lots of anesthetic). And when she said she was going to do the punch biopsy that day, I knew she was serious. They look a lovely chunk of skin out of my breast/nipple and placed some wonderful prolene blue sutures that hurt/itched all week and sent me on my way. Ow. Ow.Ow. The stiches were the worst-the actual procedure was a piece of cake.

But I have to add a tidbit here....Emma had to come with me today and Dr.Stewart's office was great-they kept Emma for me (and she let them) and she was happily playing in the nurses lounge with stickers, highlighters and pens and having a blast. All the staff was just loving her and I got to have 15 minutes of peace with the doctor. And they sent her home with stickers and a lolipop-that is a nice office-I will have to write a thank you card.

The pathologist just faxed over the report this morning, indicating that my boob is cancer free. Now I can apply some cream to the boob and see if this takes care of the "stuff" that is going on. If it goes away, yay, I am done seeing Dr.Stewart. But if it doesn't clear up, there is a slight, slight chance that she didn't get enough tissue of the breast (hey you can only do so much with a local) that the next step will be a quick trip to the OR to take a deeper tissue sample out. Eeeeeeee....I hope it doesn't come to that. If you are curious, they were testing for Paget's cancer of the breast, which is rare, and even rarer in those under 50.

I didn't worry about the results, because I know worrying doesn't change the outcome. Its harsh, but when we knew in utero that something was not quite right with Ems, I stayed positive for the remainder of my pregnancy. It didn't change the outcome but worrying would have done nothing except generate fear. Boo for fear!

Now that I am out of the woods, I shall celebrate by eating cookies!

Monday, November 10, 2008

Not Fair!

First of all, I am finally ready to upload some pics of Emma and can't find the other digital camera that has the most recent pics. These were taken yesterday at the new house (and I so love her Ohio state shirt). So maybe I will try and find the other camera and get some halloween ones up :)
Ok, not fair....Emma will be getting glasses this week. Really? Come on!!! Can't she catch a break? Seriously, she has surgery at less than day old, more surgeries after that, metal things stuck up her rear, plastic tubing stuck up her rear, nasty chalky stuff she has to swallow 2-3x a year (with another UGI next month) and now you want my baby to wear glasses????? I had a breakdown Friday night after I got home from the ophthalmologist's office b/c it was just too much to handle. And yes folks, its just glasses. It could be worse. But its glasses and you are 2. You are stuck wearing them the rest of your life. And your amblyopia is so bad that you might have to have surgery (FREAKING A) to correct it at a later date. Oh and your prescription doesn't qualify you for our kids package b/c its so bad. I wanted to scream at everyone in the place-ugh! And what is ironic (or whatever you may call it) is that I love, love my glasses. I have multiple pairs b/c I love them so much. However, kids glasses are not cool like mine and I don't bend/twist/step/drop on my $200 a pair Nine West frames. I got Emma 3 pairs of glasses (1 from the ophtho office and another 2 pairs at America's Best) because hey you are 2 and glasses are fun to break. Did I mention that Emma hates sunglasses/hats/scarfs or anything remotely on her face/head? I can't even get this child to wear a bow in her hair and now I have to force her to wear glasses?
Yes, it could be worse.......pity party for me day. In better news, our house is framed and will have a roof on it in about 2 more weeks. We went out yesterday and its huge, I mean like double if not triple the size of our place now. And the back yard is about the size of the park I take Emma to now LOL. It will be so nice to have some wiggle room and STORAGE space, which we lack now.
Ems is up-gotta run!

Monday, November 3, 2008

lack of pics, lack of time

Stupid bloggger......had an entry and it gave me an error message! Whatever-I will post some pics on Wednesday :)

Go vote!

Friday, October 24, 2008

Do we really need a fireplace in Chesapeake, VA?

Seriously people, it doesn't even get "gotta wear a hat cold" here. Then again, once you live in Iowa and suffered through some winters like we have, you'll have a whole new level of cold to compare everything to.
Yes, our new house is FINALLY being built-the foundation is down, the blocking has begun and framing should be finished within the month. More cool (or boring) pics to follow. Since I decided to blog just as Emma was waking up from her nap, this is all I can give right now!

Saturday, October 11, 2008

Chuck-E-Cheese and binkys

I have a feeling I will get to know this C-E-C place very very well over the next decade LOL! I am surprised I got her to sit long enough for the "drawing ride" but I can't explain the look I have on my face! She was chomping on a noise thingy to compensate for the "no binky during the day rule" I am trying to enforce (Emma is silently laughing about this topic in her sleep). Maybe she is cutting teeth but I swear this child has to have something in her mouth at all times, whether it be some noise maker, dolly doll's foot, a corner of her lovey or a mangled up straw she found from an empty juice box. If I could, I'd pop a piece of gum in her mouth to satisfy this fixation but since it poses a choking hazzard, I will have a wait a few years and resort to her chewing on whatever she finds appealing at that moment.
I am over the binky. Done with the binky! Ready to pitch them all to the binky fairy done. Except I am a wuss and can't break her off the habit cold turkey. She still wants it when I am doing her enemas or when she is in a tiny room with lots of people in white coats. She runs around the house calling for her "bee-bee" and will say in a frantic voice...."bee-bee"? bee-bee"? over and over and over again until she finds the stupid thing that I didn't hide in a very good spot. Her teeth are starting to shift and that scares me so "the bink" has got to go for most of the day. I will have to wait until Chad is gone for a very long seminar somewhere before I break her of the night binky habit. Lord help our neighbours when we decide to do this!

Tuesday, October 7, 2008

Butt update

Real quick here b/c Emma is taking everything out of my suitcase that is still on the living room floor.....

Butt looks FANTASTIC!!! No more surgeries on her million dollar butt hole. Dr.Levitt is having us continue with enemas until she is potty trained for pee. Once she has that down....well we will be back in Ohio for a week of bowel managment doing a laxative trial to see if we can do this route instead of the enemas. This probably won't happen until early next summer or early fall 2009-whenever she decides that peeing in the diaper is no longer cool, then we'll start making plans.

The va-jay-jay looks great too-everything has healed up nicely. Dr.Breech will keep an eye on her for like, forever, so I am sure Emma will get to know Cincinnati very well growing up.

Okay, must clean up cat puke, shower and get the day started!

Monday, September 29, 2008

Jumping Monkey

Last week in the middle of the Nor'easter that was slamming Hampton Roads, the booby club (yes Dad, I did not refer to them as the N.C. girls) chicks and their kiddos went to the Jumping Monkey-a bounce house thing for toddlers. So I can set the record straight for my confused family, these are my FRIENDS that I met 2 years ago but when all of us are together, its easier to refer to us as the booby club girls so you know who we are talking about. As opposed to the Tarleton Oaks Condo Moms that I hang out with that live up and down the street from me :) Everyone had a good time and I got some good pics which I still have not emailed to the other moms..but enjoy some of the cuties I took pics of!

The youngest one in our group....3 months old. He is just too cute!

Can you say HAPPY BABY!!!!!

Emma and Timmy rocking out!

Shelia, Jayden and Sara riding in the car.

Emma and Jayden going down the slide. I have the cutest pic of these two when they were about 9 months old, before they were even walking yet....time does fly by....

Emma "bouncing" in the house LOL
After this little outing, Emma napped for 2 hours. Gotta love tiring the kids out!

Monday, September 22, 2008

Part of Growing Up....

The lollipop made things a little bit better...... she isn't exactly smiling in this pic....
We went to Pigtails and Crewcuts for her first 'do....overpriced but since she'll only have one "first haircut", why not right? They have cool seats for the kids to sit in (firetruck, race car) while they cut your hair BUT they also have "adult seats" for those kids like Emma who did not want to sit in the special seats. Emma sat on Chad's lap and cried while they snipped a few inches off of her head. She really wailed when they started cutting her bangs. But a little while later, a lollipop and a new brown hair bow (since most of our fall clothes has some sort of brown in it), she was happy as a clam. She also found the store's treasure box and came home with 3 star rings (a.k.a our little multi-colored choking hazards).
And since we got the "first haircut package", they sent us home with a lock of her hair and a pic of her afterwards. See if I had extra time on my hands (before Emma was born), I could have scrapbooked the whole thing. Now all I have to do it plop this page into an empty sleeve in my current scrapbook and I just saved myself an afternoon! I think the last thing that went into my scrapbook were her ultrasound pics circa March 2006 LOL. One day I will scrapbook again but in the meantime, all my "stuff" can continue to collect dust in the corner of my bedroom.

Thursday, September 18, 2008

The Nipple Club

Or the booby club or what it is officially known as the Breastfeeding support group at Chesapeake General Hospital. Without the booby club, I would have given up breastfeeding the first week we had her home from the NICU.

I remember the first day I went, a Friday, and it was right after Emma had some pictures taken with her cousins at JC Pennys. I remember how freakin' exhausted, frustrated and scared I was to be with Emma all day......and back in those days she cried and cried and barfed and barfed all was a mini-hell for awhile back then. Anyhow, I remember walking in this big room with all these mamas bf and having fun with their babies. And there was chocolate cake. I remember the cake clearly b/c that was the first meal I had all day. I ate cake and had some tea and met a lot of people who I long forgot some of their names now. The leader of the group then was a older lady name Jacqueline, who my doula told me about. Technically speaking, I shouldn't have even been there since I live in Virginia Beach and I wasn't a part of the WIC program but she said to come anyway. I had dragged in my stroller, her carseat, my huge diaper bag, her bag with pumped breastmilk oh and yes, I dragged my favorite pal at the time, my yellow Medula Symphony Breastpump b/c I didn't know how long I was going to be there for. I got there right at the end and Jackie was able to watch Emma bf, give me some pointers, show me how to get her positioned and lots of other things to try. I told her if she didn't catch on soon, I was going to pump for 6 months and be done with it-it was draining the life out of me trying to get her to latch on and stay on and oh yeah, not barf doing it. She was still healing from the TEF surgery and probably wasn't feeling too well and with me not feeling too well (still anemic from all my blood loss from the C-section) we made a lovely pair. Jackie continued to help me like the entire month of August before Emma had her PSARP surgery to try and get through things day to day.

Anyhow, today was a booby club day thing. My friend Verda runs the show now (I think) and it isn't quite the same (or as large) as it was 2 years ago. However, there are a few of us that still do things together since our kids are so close in age (and we all started at the same time 2 years ago). I was watching all four of our kids play today and I couldn't believe how fast the time has gone by. They were just bitty babies not too long ago and now they were running around chasing each other at the library. I am not always the best at showing up to these things b/c of dr appts or other typical Emma things but I hadn't gone out with everyone in a long long time and I am so happy that I got my rear in gear and got to go today. My goal is to try and come to these things more often now that we don't spend our lives at the children's hospital. Emma gets to play with her friends and she had a blast doing it today.

Long story short, if it wasn't for the booby club, I wouldn't have bf'ed her for 1.5 years(and had a whole bunch of support behind me), wouldn't have known what craigslist was (thanks Denise) or met some great mamas! Yay for the nipple club!

Thursday, September 11, 2008

Before and after

Before: blah blah boring hair (this shirt makes me look preggers, which i am NOT)

After: No more ponytail for me!

Wednesday, September 10, 2008

My so not exciting life

Here it is, another Wednesday, and we are bored to pieces. It is that misty/humid/rainy day that makes it impossible to go outside and play, for the fear of getting poured on at any second or struck by lightening (my biggest fear). The only exciting things we did today was 1) Go to Dillards to get some more moisturizer (since I am scraping the last bit out of my jar) and it happened to be bonus days at Clinique (I use the super defense moisturizer which is AWESOME) and I got some freebies of lipstick and mascara, which is always nice.
2) I FINALLY sold something this week on CL-I have about 10 items for sale and I have sold, the only thing I have sold, was her old leapfrog playtable, in which Emma proceeded to grab the table out of this poor girl's hand as she was heading out the door. Emma hasn't played with it in months.....the cat however, has been sleeping underneath of it so I am sure HE will miss it more than the kid.

Yesterday was the real exciting day when I decided that I was going to lob off about 8 inches of hair and get a real "style". My hair looks amazing and I finally ditched that "mom" look that has been driving me nutso lately. I would take a picture, but I have no idea where my camera is. The kid has it somewhere I am sure. Plus, I look like crap today b/c Emma was up all night with some post-nasally-coughing-congestion thing so I got zippo in the sleep department. Once I have the camera, I will post some pics of the new do. Its short, as in above the chin short. Chad, not surprisingly, hates it but alas, he'll deal with it somehow.

Oh well, maybe something exciting will happen tomorrow. You never know with a 2 year old!

Wednesday, September 3, 2008

Prayers for Lilie Clark's Family

It breaks my heart to know that Miss Lilie Clark passed away a few hours ago. I have been following her life (blog) for almost a year now and she finally earned her angel wings tonight. Through the help of Amber and many others, we were able to send Lilie and her family to Florida this past spring for a wonderful vacation, knowing it would be their last one with Lilie.

She was truly a fighter and will be missed dearly by her family. If you are reading this, please pray for healing for this family-their toughest days are yet to come. They are donating some of Lilie's organs for research on GM1 Gangliosidosis.

It is a rare, incurable lysosomal storage disease (enzyme deficiency) that has no cure and most children do not live to see their second birthday. Lilie surprised most of her doctors and lived a wonderful life with a family who loved her ever so dearly.

I hope you are finally able to run free around Heaven Miss Lilie-you are finally healed!

Thursday, August 28, 2008

Myrtle Beach-we are home!

We are home-had a great time away, ate some good food and enjoyed the beach....its crazy that we had to drive 6 hours to go to Myrtle Beach when our "own" beach is only a 20 minute drive down the road-seriously we never go to the beach and we live here LOL.

We stayed at the Royale Palms (part of the Kingston Shores Resort) and it was super nice-the condo was bigger than the one we live in. We stayed on the 18th floor and had a awesome ocean front view. We got a 2 bed-2 bath condo b/c those were the only ones that had a oceanfront view like this. It was well worth the money for the view and the extra space. We even had a doorbell-I thought that was pretty cool.

View of part of our deck-it continued out to the left and wrapped around to the other side. Emma and I had breakfast out there one morning.

View straight down looking down at the many of the pools at the resort. Part of the pool had a real sand bottom and a waterfall. Pic taken on Monday, in the rain.

View of the building from the beach. Ours is the one on the left, the other one on the right is the Hilton.

View of the living room/dining room from the deck.

Gotta love the decked out kitchen-laundry room on the right. I love this kitchen!

Dining room/living room

We got there around 2 on Sunday, spent most of the afternoon at the waterpark on the other side of the complex (I forgot the camera a lot while we were down here) and then had dinner at a pizza place on the other side of town. We were almost in North Myrtle Beach so most of the stuff to do was about a 15 minute drive from us. Chad and I took her to a local park to "play" (ie to tire her out). This was followed by a trip to the Piggly Wiggly grocery store (which I had to go in b/c of the name) and for the fact we needed to stock up on snacks/juice/milk. Meltdown at the check-out line followed....

The trip to the park didn't work b/c she didn't conk out until 10 that night.

Had a little too much fun on this day.....

We went to Barefoot Landing, which was 5 minutes up the road from our hotel-and she rode a cow, the carousel and had a butterfly balloon made for her. I have her monkey harness on her in this pic-that way she can walk in crowds and we still have a good hand on her. I get some "I would never put my child on a "leash" look but then again, I used to give those looks....until I had a child who won't always hold my hand. And Emma LOVES the monkey and she loves having us "walk with her".

Snack time on the beach.

Checking out the waves with Daddy

At the Ultimate California Pizza place with Daddy

Where am I? Behind the camera. And Emma wouldn't want to pose with my anyway on this trip. This was a "da-da" trip. Daddy had to dress her, change her diapers, shower with her, walk with her, sit next to her, hold her hand, put her in her carseat, put her to sleep, cut up her food for her, ride on rides with her, walk with monkey with her, push her stroller and play ball with her. Mommy was left out in the cold most of the trip. I don't know if she finally realizes that Chad isn't around much ('cause he is working, making us money, putting food on the table) and by golly, she was going to get everything out of him on this trip. Chad had to take her to the bathroom with her b/c on the first night, she PUKED from crying so hard when he got up from the table to pee. I couldn't even push her stroller without her turning around and saying "da-da push". If I held her, she wanted daddy. If I tried to change her diaper, she would run, grab the diaper and give it to Chad. It was great :)

Our last night there we had dinner at Rioz, which is a Brazilian Steakhouse. It was the best meat I have ever had there. It's basically an all you can eat meat buffet (with an awesome salad/seafood bar) but the "buffet" is guys walking around the restaurant carving various types of meat at your table. I am butchering the description so you better check the link to see what I mean. They gave Emma mac and cheese, freshly baked nuggets, fries, polenta sticks, grilled bananas and mashed potatoes with cheese. The fries arrived before our drinks did LOL. It was the best meal we had down there.

It rained on Monday and then the rest of the week the weather was beautiful. I got some sun finally and was able to lay out by the pool for a bit without Emma in tow. The waterpark at the end of the resort was a big hit with Emma (2 slides to go down) and she had fun playing in the water. Forgot the camera of course :)

All in all, we had a great first va-cay with Emma. Now back to the real world :)

Friday, August 22, 2008

Myrtle Beach

We are hopefully out of here without any drama tomorrow morning. Chad has to go adjust for an hour, and then pack up the car and we are off! We are going to drive 1/2 way tomorrow to Durham, NC to visit an old college friend, spend the night there and drive the rest of the way to the beach on Sunday. We are just about all packed up so all is left is the little odds and ends.

Surprisingly (big shocker here), we have a hard time finding someone to check in on what Avery, my niece, calls "cujo cat" because lets face it, when I am not here and other people try to make sure he is alive, has water and food, the cat goes people tell me. My mil will check on the crazy cat only if my fil comes with her. Pungo spits and hisses all the way from the front door to the kitchen, where the food and drink are at. He about ate our friend Heidi alive a few years ago when we lived in Ohio (and he wasn't a year old yet) when we had to drive back to Iowa for Chad's graduation....after that, she didn't volunteer to watch the cat if we happened to go away. Why have a dog when you can have a cat like mine?

I am sure cujo cat will be fine, since we have left him alone this long before....actually, we have left him longer when we left to take Emma to Cincinnati this past spring and boy was the cat pissed when Chad walked in the front door without me :) Chad was trying to get over the nasty stomach flu and the cat was biting him all night. I am more worried about the neighbor's cat who we feed 2x daily (don't ask) so hopefully he won't camp out in our backyard waiting for food.

I am tired and now that the last load of laundry is finished, I am going to bed. I will try and post some pics while we are down there, but don't hold your breath b/c I can't seem to post pics while I am staring at the digital camera across the living room. Now add the vacation into we'll see :)

Sunday, August 17, 2008

Fantasy Football

I made a passing comment at lunch last week that I wanted to play FF with Chad (one of his patients formed a league last year) and he said no go- it was all filled up so maybe next year.

But then, today, a new league has been formed and now I am playing....LOL

I need a cool "girl power" name so when I win, it won't be forgotten :) I found "Victorious Secret" to be the best so far....

Obviously Chad and I have nothing else better to do (pack/put house up for rent/build new house/clean house/sell stuff) after our va-cay next week except worry about the draft.

Love the fact we have our priorities straight!

Monday, August 11, 2008

Traffic....Traffic.....More Traffic....Truck off bridge....

*Sigh* We spent about 15 hours or so in the Jeep this weekend. Our friend Jim was getting married in Bethesda, which is a suburb just outside DC. My parents live in Catonsville, about 30 miles north of there and was going to watch Emma for us while we had some fun living it up. Just zip on up there, drop her off and relax at the wedding.....NOT!

Leave VA Beach at 10:15 (b/c Chad just had to have the office open for an hour on Saturday). Get to the bank and realized he forgot his dress shoes. Backtrack back home, grab the shoes, get on our way. This is a bad omen-I check my bag to make sure I got my heels!

Traffic Delay 1: 5 mile back-up at the Hampton Roads Bridge Tunnel, one of two ways to get out of this place...we quickly jump off the interstate 64 and go down 264 to 164 to 664 and pick up the Monitor Merimac Bridge Tunnel....this was somewhat out of our way and not a big surprise-always a back up on Saturday mornings on the stupid bridge-tunnel.

Traffic Delay 2: We are back on 64, across the bay.....7 mile back up at Jefferson Ave in Newport News. Off 64 we go again up some back roads to Williamsburg and get back on 64. Traffic is still not cleared and we crawl up to Richmond at 40 mph. Count endless cars on side of road.

It is now almost 1:15pm....3 hours and we are finally in Richmond, which normally takes 1.5 hours to get to. Snarf down Chick-Fil-A and off we go around the city on 295N.

Traffic Delay 3: Sign reads...Major Delay at 295/95 we go onto route 301 N to avoid 95 for the rest of the trip. If its bad in Richmond, DC will be hell and we would never make the wedding. We are moving, but there are lights, 55mph speed limit, little towns..ect. And I am driving and I am a lousy driver when it comes to speed LOL.

Finally cross into MD at starts at 4:30.....we decide that we are going to miss the wedding and make it our goal to get to the reception. We get off of 301 and onto 97 to head to my parents house. You guess it! Accident. But we get through quickly. I start to speed b/c I know these roads better than life itself. We arrive at my parents at 4:45pm (the wedding is shot, we are trying to make the reception at this point). Hurry up and change, I do my hair/make-up (mascara included) while Chad zips down dreaded 95 S (but no traffic) and we arrive at the reception at 5:45pm-one of the first people there. Nice wedding. Good to see all of our friends from our college days, which were about 10 years ago....has it been that long? We seem so old. And no one wants to dance :( It was different when we were back in our twenties with no wedding rings, no kids and lots of booze in our systems. We last until 9:30 and have to go home.

Time in Car on Saturday: 7.5 hours

Emma and Chad snore all night.....4 hours of sleep is what I get.

Sunday: We are out the door at 10am, grab some McD's and head down 97 to go to our college on the eastern shore to visit a friend. I am not anticipating anything big b/c in the 100 or so times I have made this drive over the past 15 years, I have hit traffic on a Sunday maybe 2 or 3 times and 1 major jam in 1996 or so on a Saturday morning trying to go to the beach.

Traffic Delay 1: See flashing sign.....delay at exit 27.....about 10 miles from the bridge. We should have turned around and scraped the visit right then and there b/c we were at the 97/50 split. 50 would have taken us back to DC and down 95. But we press on and then WHAM! Sitting in traffic at exit 27, right before the Severn River Bridge. But we are moving, slowly and decide to wait it out. An hour goes by and we have not made it to exit 29, 2 miles away. The bay bridge is still 8 miles away. At this point we decide to turn around, scrap the visit (b/c that is the ONLY way to get to Salisbury without going back through B-more, up 95 N and down 301....about 5 hours out of our way). Turn around at exit 29 and head towards DC. ***It turns out a truck had run-off the bride and fell 40 feet into the bay at 4am......perhaps if we wern't listening to Barney's trip to the zoo we would have heard about the backup from hell on the radio*****

Traffic Delay 2: No traffic at all through traffic heading into Virginia and then we hit #&$^$ Springfield and lo and behold a sign flashes ....8 mile back up......expect delays. Off we go on the back roads again. Thank GOd for our GPS in the car.....we would have totally been screwed without it. At some point we decide to try out 95 S again and we get on right before the IKEA store. Got on 95, got off 95 and had lunch and shopped at IKEA so poor Emma could see something other than the back of our heads. Got food, got coffee, got a new stuffed cat and some stuff for the office. 2 hours later, back in the car we go.

Traffic Delay 3: And now it is POURING outside, we get on 95 and.....oh you guess it......accident b/c of the rain but after about 15 minutes, we are moving through the rain. On the other side, I think I counted a 15 mile backup.....that just sucked for those drivers trying to get back home in the storm that turned the sky purple (I wish I would have taken some pics).

Traffic Delay 4: We get on 64 E and all was good. I was checking the 511 info line for delays and couldn't find any. We get to the split with 664/64 and see a sign......3 mile backup to bridge-tunnel.....freak.....are you kidding me?????....we take the long way around again! And then.....the gas light comes on-we don't even have enough gas in the damn car to get home. Off the interstate, get gas and hauled some ass to get back home. Fed Emma some turkey and cheese in the car to calm her down.

We finally walked in our front door at 7:45-Emma is finally free of the carseat!

Time in car on Sunday: 7.75 hours

Total round trip time: 18 hours

I cannot believe how many cars were on the road this weekend-even through these little towns there were cars everywhere! And the traffic jam at the md bay bridge....holy cow it was at least 20 miles......they only had 1 lane open to get across the other span of the bridge. All these cars had to go through the toll plaza and then merge into 1 lane, cross the stupid bridge and then you have all these cars flooding the towns on route 50 trying more likely to get to the ocean before summer is over. If we sat there, it would have taken over 6 hours for a 2 hour trip to Salisbury. Thank the Lord we turned around. The driver of the truck did not make it....looks like he ran into on-coming traffic, lost control of the truck, crashed through the concrete barriers and fell 40 feet off the bridge into the bay. It was a horrific accident and who knows when the other bridge will open back up.

Did I mention we had fun at the wedding and Emma was a perfect doll for my parents? I pray that our trip to Myrtle Beach in 2 weeks goes a little smoother!

Monday, August 4, 2008

GI update

Waiting....we just love to wait at the GI's office. Arrive at 9 (early for once), appt at 9:15, wait about 1/2 hour to get vitals and into a room, wait another 1/2 hour for Dr.Kobak to come in, have a 1/2 hour appt re-hashing the previous 3 months of pooping/eating/developmental stuff and finally at 10:45, we were out of there, almost 2 hours later. I except this so I came prepared with snacks, toys and lots of milk in her sippy to hold her over.

Emma loves Dr.Kobak and was making lots of conservation with him today, which is rare for her to do with all the doctors that she sees. I think out of all of them, he is the most laid back one and always reassures me that I am doing a fantastic job raising her and addresses every single one of my questions.

I thought he would would totally flip out over the daily enema thing but once I told him the story on how we ended up there, he was perfectly fine with it. The less we stress about poop, the better off everyone around here is. He also told me to not worry/stress out about the whole potty training thing either-though he agreeded that we could save some trees if we got her to sit on the potty after the enema LOL-we go through about 200 diapers a month just for collecting the enema solution. His advice is if she is scared to sit, don't push it and when she is willing to sit on the potty for a longer time, then start trying it more and more often.

I thought this time we would be scheduling the esophageal dilation He wants to see her in November, see how things are going and get an upper GI in early December. He said as horrible as this test is for us, its a heck of a lot less invasive than taking her back to the OR and doing a dilation that may not really need to be done. If the UGI shows the same size stricture, then we'll wait another 6 months and repeat the test unless something changes. If the stricture is larger, well we'll be booked for an OR in the second week of December. He doesn't want to put her to sleep unless she has to. I like his approach and he never wants to rush her to the OR unless something absolutely needs to be done-hence repeat the test to see if things really have changed. If not and she is doing fine, then we spare her from being put to sleep for the almost 15th or something time-its hard to keep count.

Next year, this is the year we drop down from every 3 months to every 4 month visits with GI and the year after, 2x a year and then 1x a year. Kind of like our dilation schedule LOL. I have a feeling most of her specialists will be seeing her at least 1x a year until she is 18. I have traveled a lifetime's worth of visits to our childrens hospital so any decrease in appts is a good thing.

I am beat-massive migraine so I am off to bed-yay for a good day. Oh, she is 34 inches and 25.8 lbs...2 lbs and 2 inches since her visit in May.

Monday, July 28, 2008

We got the loan!

Some bank is actually crazy enough to give us a $400,000 loan (people in the midwest/south probably just choked or passed out at the cost...CPR maybe necessary) but $400K is a drop in the bucket for loans around here :)

Now we go out and get our construction loan (its so complicated I will just leave these details out) and hopefully in the next few weeks, we will officially start building our new home!

Here is a link to the property site.....the whole piece of land is divided into 3 pieces of property and we are the middle lot. Chad's BIL owns the lots and the first one on the end is sold, ours is ours and they are waiting on a buyer for the third lot. The middle lot was the biggest (and the nicest) so we took it.

Now the fun part begins......

Sunday, July 27, 2008

Binky Girls

I got to watch Gabriella on Friday afternoon and she was just a doll! Emma on the other hand.....threw a couple of fits but what else is new lol! They both love their binkys and when one didn't have it in her mouth, the other was trying to find it and couldn't wait to pop it into the empty paci-less mouth. It was just too cute to watch. They play a little better now then they did last month at her party and it was neat to see them interact with each other. They were pooped
out by the end of the day (see pic above) and that is when the cat got brave enough to make an appearance-he hid from the girls most of the day. Smart cat :)

Wednesday, July 23, 2008


If you have never lived in or visited Baltimore, then you probably never truly had a snowball. These are NOT SNOWCONES or fake imitations from Rita's Italian Ice. There is nothing like a snowball on a hot day. We went to Opies, which is about a 2 minute drive from my parents house.

Snowballs hold a special place in my heart for 3 reasons: 1-I grew up eating them with my grandparents in the summer, eating grape snowballs with marshmallow with vanilla ice cream. I so loved those days when I was little.
2-I got my first work permit ever when I was 16 to a snowball stand! I loved this job!!! Free snowballs anytime and I got paid a whooping $4.25 an hour to slave away in a little shack on the corner sweating out strawberry snowballs.

3-If I hadn't been working that night 15 years ago (probably right around this date and time) a lady asked if she could post a flyer about new Labrador puppies for sale....that night after my shift we got our dog Daisy, who sadly passed away to doggie heaven a few months ago (tears in eyes writing this). So snowballs to me aren't simply shaved ice doused in neon color syrups; they are a part of my being, especially in the summer.

My favorite is chocolate or egg custard flavors......until you have one, those flavors sound a bit bizarre. Emma had her first one of many last weekend. When I was little, I usually got 1 of 2 flavors-grape or skylite, the aqua blue color. I got Emma skylight and true to her Baltimore blood that runs through her from her me-mom and pop-pop, she LOVED it! Oh, and Lacy, the new dog loved them too. There isn't anything like it on earth. So if you happen to be in B-more, you must must must get a snowball in the summer-it'll be the best $1.50 you'll ever spend.

Thursday, July 10, 2008

Pee Pee in the potty!

I got a new potty today.....the baby bjorn hot pink potty.....a little more "simple" than the one I already have. She tryed it sans diaper when I was in the bathroom and didn't do anything. Then in the living room she went back into the bathroom and dragged the potty to the living room. I then told her if she wanted to sit on the potty watching her movie, she had to take off her diaper and pee.......

She then proceeded to take off her diaper (she does this now and then), sat on the potty and PEED!!! I about peed my pants LOL because she just gave me this "I told you so look" and then started peeing while I stared at her with my mouth on the floor. She then stood up and said "done done?" and tried to put the diaper back on. Good thing I got some pull-ups today on a whim-on sale at Target.

She got 1 M&M which she didn't eat (found the remains on the floor) so I better find something else she likes instead. Who knows if this was a fluke or not but I guess I will be starting to sit her more on the potty each day.

Yay for pee-pee in the potty! Its hard to tell from the pic but yes, there is some light colored pee in the potty pic.

Monday, July 7, 2008

The perils of eating "freshly picked"

Ahhh.....probably from the fresh corn I got today-the guy told me he had just picked it from the field. Emma and I took a trip down to Pungo to go blueberry pickin'! Its about a 1/2 drive down there which seems like eons nowadays. I used to drive an hour to go to the mall when we lived in Ohio but now anything over 20 minutes is a hike LOL.

It was a walk to where you parked your car from where you pick and of course, I forgot the camera in the car and there was no way I was walking back in the heat to get it. I don't think you can tell from the pic but Emma has blueberry all over her face LOL. She wasn't the best helper-she had her own bucket and would pick about 3 or 4 into the bucket, eat them, and start all over again. And if I got too close to where she was picking (and putting them in my basket), she would push me away and try to reclaim those berries!
She had a good time sans sunscreen, which I also forgot at home and stayed close the entire time. We went to Pungo Blueberries Ect., where they also have BLACKBERRIES! By the time we were done picking our 2.6 pounds of berries, I knew better and called it a day. These are the pics after we were done (with the camera that was baking in the car).
I filled up another one of these size containers, plus a smaller one. Muffins are now baking in the oven.
I did end up buying some sweet corn and already picked blackberries at Henleys Farm my local Pungo standby and this is where I probably got my stowaway. About 3 or 4 years ago, I was in blackberry heaven and took a bite of one (these are huge) and when I looked at the half-bitten berry, there was a half of a grub squirming out....the other half was already in my stomach. From there on, I only eat blackberries in one bite so if there is something alive still in it, I don't want to know about it.
All in all, it wasn't too bad of a Monday!

Wednesday, July 2, 2008

Tuesday, July 1, 2008


Yesterday was a sad, yet exciting afternoon. Ms.Debbie has been with us since April 2007 as Emma's PT gal. And after a visit with Ms.Debbie and Ms.Jenn (Speech Eval)....we no longer qualify for the Infant Program (program for kids with developmental delays). Emma passed her speech eval with flying colors oddly enough. She can say about 50 words and was a little chatterbox during the test. We have to work on the "paci usage" and start doing time-outs with her when she is being bad LOL. Emma has also caught up with her peers for gross and fine motor skills :) When Debbie first met her, Emma couldn't even sit up on her own (9 months) and refused to try any solid foods. Emma also cried non-stop during our weekly sessions so it was draining on her and me. Today, Emma just chatted away with Debbie, looking in her box of toys for her baby doll and having a grand ol time playing with the therapists. I was trying to hold back tears because we have worked so hard with Emma trying to get her to sit-up, to be on her tummy, to eat, to crawl, to cruise, to walk, to color and to jump and its good to know our hard work has finally paid off!!! I feel as I no longer need to say "well she isn't doing xxx yet b/c she was 6 weeks premature". None of those labels apply to us anymore. We have "graduation" in August and unless something else comes up, we have our weeks completely free of therapy! Yay for Emma!

Friday, June 27, 2008

The look.....

Yeah, yeah, pics to come, I promise.

I had to get another KUB of Emma's belly today to make sure she was CLEAN (yesterday was a not-so-fun poop day and today's enema produced bright green results-ick) but she is clean so I know now that we have a clean system to work with using our new bag/foley cath enemas. Yay! Thanks to Bridgette for helping me out so much, over LIVE voice-to -voice Internet chatting from AUSTRALIA! How cool is that? I love talking to her and listening to her speak with her Aussie accent LOL

But the topic of this post, the look, well I saw it today in the radiology waiting room. My friend Denise and her daughter Jayden (Emma's age) and her newborn son (born 6/5) were in there. I admit I haven't called her since her baby was born (did send her a text) but things with Emma have been out of control and I knew if she needed something, she would call. She was nursing and when she lifted up her head when I called her name, my heart broke into a thousand pieces. She had the look of "something is wrong with my baby" all over her face and I knew, I just knew something was wrong. And she started crying and I was crying and Emma and Jayden were digging through my purse looking for snacks....oblivious to what was going on. Their focus were on the teddy grahams in the bottom of the purse.

Her son wasn't gaining a whole lot of weight and he was there for the THIRD NEWBORN SCREENING b/c the first one came back with a high chloride reading and they went to repeat it and it got contaminated so she was back, again, trying to get this test done. A dumb*ss nurse told her last week that a high chloride level and him not gaining weight was a sure sign of CF. WTH??!!! You don't tell a new mom this as she is walking out the door! A doctor tells you this folks! Oh, and they wanted to test him for anemia b/c he was so pale and high chloride levels also go hand in hand with anemia(mom and dad are so very tanned). And like all of us do, she got on the Internet and started researching, starting freaking out and started to wonder if her baby boy would ever crawl, walk, talk, go to school.....

In-between sobs she said that she could handle the anemia, but not the CF. She was frustrated that the test would take 2 weeks to come back but scared about finding out the results. All I could do is listen, feed her daughter snacks and offer my love, my prayers and my help if she needed it. I didn't know what to say but I knew I didn't need to say anything at all.

She asked me how I handled everything with Emma (she met me about a week after Emma got out of the NICU) and wondered if I hated God for giving me Emma with all of her "ticks". And I was honest with her....I told her I did hate God at first. Why me? Why us? We did everything right but still......why did you bestow upon us a baby with no butt hole (Becca F will find humor in this). And I told her how sick I was about "God doesn't give you more than you can handle blah blah blah"). And from people telling me this with "normal" babies....I about ate them alive. It's like we were being punished or this was some trial we had to go through for God. But then I read a different story about the Saints in heaven deciding who Emma would go to.....and he chose us because WE COULD CARE FOR HER. He knew that we had patience when other people would not have, He knew we had the open-mindedness to try other things that others would not have thought of, He knew we would travel halfway across the United States for a wonderful surgeon to finally fix our daughter where other parents might not have had the money,the time or the insurance to get her there and finally God knew that we would love her, do whatever it took, no matter the costs, to make Emma ours. When I look at it this way, Emma is indeed, hand-picked by God to be given to us and no one else because we could care for her in the way she needed to be cared for. Maybe Denise listened, maybe not but I wanted her to know that whatever happens, your faith and love always pulls you through, somehow, all the time. God gives us our children for a reason, a reason we may not be able to understand at first.

If Emma didn't have the "whole no butt no poop thing going on", I would have never crossed paths with my wonderful girlfriends and their "no butt-hole" kids as well and quite frankly, my life would be dull without them and their constant support. I love them all to pieces and wish we lived on the same street to go get some margaritas on those hard days.

Realistically, everything is probably fine and it's probably just anemia. But until she knows for sure, time is at a standstill. Please pray and keep her in your thoughts

Tuesday, June 24, 2008

Happy Birthday Emma Rose!!!!

Happy birthday my sweet baby girl!!! We had ANOTHER party for Emma on Sunday with Aidan and cream and cupcakes! I have more pics to post but today we have 2 doctor appts and we have no food so today will be a busy day :)
Hope you enjoy being 2 Em! Love, Mommy

Saturday, June 21, 2008

Just a sneak peek

It was a beautiful party.....I am beat so here is a pic until I can post tomorrow :) I just totally loved her party girl dress!

Friday, June 20, 2008

Two years ago tonight.....

About this exact time two years ago, my water broke and I went into labor. I remember laying in bed and then getting all ticked off thinking I was peeing myself again until I got to the bathroom and everything came pouring out. I was a little surprised b/c I still had 5 weeks to go, but hey, she was ready and I couldn't wait to be a mommy. I remember how the mood all changed when I got my midwife on the phone and told her the good news and then I added..."it feels like water is gushing out of me". She calmly asked if it got worse when I stood up and of course, it did. Dead silence on the other line. All she said was to leave NOW, don't even pack a bag unless it is ready. No time to get a snack or feed the cat, just get in the car and drive.

Lucky for us, it was 10pm, no body on the road. I remember listening my Third Day CD, listening to my favorite song on that CD (My Offering) and being perfectly calm. I knew I and Emma were in God's hands then and I had nothing to fear. I started to "hypnobirth" myself into another state of being and simply focus on my daughter being born.

Tomorrow (2:55am), she will have been on this earth for 2 years. Tomorrow is her 2nd Birthday party. Tomorrow we celebrate another year that we got to spend with her and watched in amazement of how far she has truly come...,

Wednesday, June 18, 2008

I've been tagged!

Ok, Toni tagged me LOL so I hope I am doing this right.....

Here's how it works: Use the first letter of your first name to answer each of the following. They have to be real places, names, things - nothing made up. You can not use your own name for the boy/girl names.

1. What is your name? Laura

2. A 4 letter word: Leaf

3. A vehicle: Laredo

4. A city: Lewis Center, OH

5. A boy's name: Lance

6. A girl's name: Leah

7. Dessert: Lemon Cheesecake

8. An occupation: Lawyer

9. Something you wear: Longjohns

10. A celebrity: LeAnn Womack

11. Food: Lucky Charms

12. Something found in a bathroom: Lipstick

13. Reason for being late: Lost

14. Something you shout: Look out!

15. An animal: Lepoard

16. A body part: Lips

17. Word to describe yourself: Loving

I tag Kristin and Amber :)

Sunday, June 15, 2008

Happy Father's Day

Good day here- breakfast, nap, steak for lunch, pool, playing with daddy, dinner, and BED. Got the rash GONE, still doing 1x babylax/enema combo and she stays CLEAN so her butt can heal-YAY YAY YAY!

Her party is Saturday so we are getting ready for that and Sunday is a mini-party at the pool with her friends in the neighborhood-cupcakes and of course, playing in the pool which she LOVES!

Oh, and my drama yesterday....I go to take out the trash and I hear all this commotion going on down the road....birds going nuts and I know they are after a cat. Sure enough, I round the corner and the birds are dive-bombing the CCC orange cat who has a BIRD IN ITS MOUTH. All I had on me was the empty recycling bag which I proceed to bat the cat with so he will drop the bird. And he then, the CCC 3 other cats were on me, trying to get the bird and now I also have the birds trying to get me! I somehow managed to get the bird in the recycling bag, shoo off the cats and the birds by then left me alone. A few hours later, I finally get a call from the wildlife rehab lady and I happily dropped off the bird at her home down near the beach. It looks like the wing is broken but she is confident the bird will be ok.

Our cat was going nutso b/c I had the bird in a box in our 1/2 bath downstairs and he perched outside this door for about 4 hours-the bird was mighty ticked about being in the box.

Keep in your prayers for our friends in the midwest. Chad and I used to live in Iowa and I worked in Iowa City. It unreal that the road I used to drive on is underwater-we knew it was bad but we saw the photos on the news tonight and it about broke my heart. Our new house is going to be built smack dab in the middle of a floodplain (which is most of VA Beach/Chesapeake) and backs up to a lake. I think I will be calling our agent about flood insurance tomorrow.

Wednesday, June 11, 2008

Now a happier post

Ok, enough about butt creams and burns and is a movie of Emma helping me unload the groceries Monday. She can't hardly wait for me to finish unloading the car so we can start this fun game. She actually takes the bags that I drop off at the front door and while I am making another trip out to the car, she is dragging bags into the kitchen for me.

I am bad about the bags-I have a ton already and she has seen me throw enough away to know where they go LOL!

Yesterday was picture day at JcPenny.....they always do such a good job considering my kid has never gone in there with a smile on her face until yesterday! Finally finally finally she didn't have a freak out attack right when they start snapping away. I will post them once I get the pics back in two weeks. But this is the dress she wore; I had one from TCP picked out but when I had her in this outfit for Chad's B-Day, I got so many complements on it that I swapped out dresses. She'll wear her pink dress on her B-Day in two weeks. And yes, for non-big Wal-Mart trips, I usually take my trusty green recycle-able bags but I was doing some major shopping on Monday and honestly, forgot to grab the bags. Blame it on the 100 degree heat :)

The office that shall not be named

It's almost like they don't want us to come in :) Yesterday, the butt burn still wasn't gone (and appeared to be spreading) so I called the above office in the title, who called me back and said to add Milk of Magnesia to the mix. Okay, a little strange, but I'll do it. Today, the butt burn looked the same, if not even WORSE. It makes your stomach turn looking at it and its gotta hurt like hell for her. I call the office, AGAIN, got the nurse who I don't really like (long drawn out story there) who said, don't used MOM, get some Maalox, pour into a bowl, skim off the top layer, mix in with triple paste and apply. I told her Emma's bottom was looking really really bad and that perhaps we should come in to make sure there is no infection. No, no no, we see this all the time, blah blah blah, keep changing the diaper, oatmeal bath, open air, ect. They said coming in would do nothing and they would still tell me the same thing. #^$^^^#^% But then I INSISTED that if by Friday morning, if there wasn't any marked improvement, that I was coming in, period, even though they don't do clinic on Friday, which she said was fine, we are always the exception there. WTH? Don't you want to see this horrible rash that the LT is causing my poor baby pain? Now, I could call my pedi who would get us in ASAP, however, I would fear she would pass out seeing this rash and call child protective services on me. Plus, the surgery people probably see this rash more often with colostomy take-downs, ect and probably have a tad more experience. I guess I will be waiting and seeing....I reduced her laxative dosage tonight, gave it to her 3 hours later than normal so hope for the best!

In our diaper cream arsenal, we have the following:

Triple Paste (the actual 1lb JAR)
Petroleum Jelly
Cornstarch Powder
Neosporin with pain relief
Milk of Magnesia
and good ol fashion baby powder

11 things people, ELEVEN different things, not to mention the hundreds of combos you can use to paste on the keister. There are probably some of you out there that haven't even heard of ilex or calmoseptiene and let me tell ya, they are about 10 bucks a pop for a 2oz tube!

What we are using today/tomorrow:
1/4 tube ilex (skin protectant)
1/3 tube neosporin (antibacterial and pain relief)
3 tablespoons of Maalox, cherry flavored
A good helping of triple paste
and cornstarch to thicken things up
-Mix all together in a disposable bowl and apply apply apply

If this doesn't work, I don't know what I am going to do!!

Sunday, June 8, 2008

A better weekend

It seems like when Chad goes out of town, all hell breaks loose around here :) I did manage to get Emma cleaned out by Saturday morning-tons of poop just waiting to come out. And today was a poop explosion in the crib so I would say the new laxative dose is working LOL. And no smearing of poop so her butt burn is almost gone. I may not need to get the silvedine afterall but that sounds like something good to keep on hand for emergencies.

Emma spent yesterday afternoon with her cousins and had a blast but I was there too so no break for me. Today, she went back over to her Nana's house (cousins still there) and I got 2 hours of alone time without her. Spent at the pool, trying to even out my tan. It's hot enough to fry an egg on the sidewalk, and perhaps a side of bacon.

I used to love laying out all afternoon. While I was working in Iowa, I used to get all of my running done, laundry done and put away, worked-out, got the grocery shopping done all on Saturday (I was up by 7 since I woke up at 5am during the week). That way, on Sunday (in the summer), I would sleep in, could go to Panera and drink loads of coffee, read the paper for an hour, come home and go lay by the pool all afternoon. It was so wonderful and relaxing and I read oh so many books. Flash-forward 4 years later: I got up at 6:30, made pancakes, tried to read the paper without my daughter taking pieces from me and going after the cat with them, gulped down my 1 cup of coffee and spent the morning cleaning up poop from the night before. But when I got to the pool, I just couldn't relax. I didn't have Emma to talk to and watch her enjoy the water and after about an hour, I packed up and went home. The laziness has lost its luster and the fact it was about 105 degrees (with the heat index of 110) outside. I came home, took a nice long shower, read another chapter or 2 in my book and went to pick up Emma. I think secretly I miss her when she isn't around-come to think of it, I am going to be sad when she starts going to preschool :( Its like I want the break from her, and when I get it, I am wondering how long is it until I get her back.

Chad is home (gone since Thursday) so I am sticking him on kid duty tonight. Hey, if you get to sleep by yourself, without a baby waking you up at odd hours, then you are so getting up to check on any crying coming out of her room.

I ought to make him change her tomorrow morning but I won't be mean :)

Saturday, June 7, 2008

Meet Lacy

My parents held out not even three months. Our dog Daisy went to doggie heaven in March and we had her for 15 years. Daisy was a black lab who is missed very much. And what do my parents do? They search CL looking for a dog, and not just any dog, a lab. And yes, they found Lacy who happens to be a black lab. They love Lacy already-even if she already chewed the squeaker out of 2 toys. Good dog!

Friday, June 6, 2008

It's been a "crappy" week

My moods are directly related to Emma's pooping pattern. If she is cleaning out every morning and clean the rest of the day, I am a happy camper. If she is not pooping great....well I am about as cranky as they come. I swear that even with the barium out of her system, it is still wrecking havoc with it. Dr.Levitt wanted an xray of her belly today to make sure she did indeed pass all the "special juice" from Monday, which she has. However, her lower part of her colon is full of poop and it isn't going to come out on its own. He wanted me to do an enema today, and if it didn't look so hot, another one tomorrow before re-starting her laxatives. Well the enema DID NOT GOOD WELL today-yeah, poop pieces came out but nothing dramatic so tomorrow morning I'll do it all over again, as well as 2 more saline enemas later on in the day before the LT tomorrow night.

*Sigh* She is pissed that she is backed up AND to top things off, b/c she is backed up and now is pooping constantly, her butt burn will turn your stomach. I have been trying everything on the market, and finally got even more cream today- triple paste. This has worked well, acutally it worked fast! Within 2 hours, 50% of the redness was gone. I slathered her up tonight and hope for the best. I am not expecting poop in the morning since she didn't take any LT today or for the fact that she has eaten 1 lunchable junior, 1/2 of my starbucks iced coffee (caffiene is a laxative people), 1.5 graham crackers and about 4 tiny pieces of a turkey dog, topped off with about 1 tablespoon of cheese. So if you do the math; what goes in=what comes out.....she isn't going to have a lot anyway. She did drink more today than yesterday so it's better than nothing right?

I tend to isolate myself when this is going on- it takes all of my energy to focus on cleaning the kid out that I really have little left to give. I missed taking her to the pool today with her friend b/c I wasn't sure if the poop would stay in her diaper so why risk it? Tomorrow we are supposed to go to the park but if there is no poop, we probably will not be going :( I just learn to accept these things and once we get back on track, we will be fine. She'll have another xray on Monday to make sure she is cleaned out as well as a trip to her local surgeon to get some silvadine butt cream to see if it can help with the burning from the LT.

Well, its 9 and I am wiped out. Better sleep while I can ;)

Thursday, June 5, 2008

We "thought" it was good news....

So our GI doc just called and said that the barium swallow did look good. There is no stricture but HOWEVER, he said there is some "indentation on the upper part of the esophagus" but very mild. He said he really studied the films and compared them to the ones in 9/07, 1/08 and this recent one and there is a difference from the one taken 9 months ago.

Blah, so at some point in the future, she'll need to go back to the OR for a dilation. Dr.Kobak said for now, she is fine and we won't even repeat the study until December at the earliest and March at the latest. Unless she starts choking a lot or starts vomiting again, he isn't rushing to take her back to the OR. He said to probably plan on it early spring. I trust him on this and he has always been pro "whatever I want" but reassured me that this is something to monitor and not worry about.

Dang it- but what can I do? She is "supposed" to grow out of the dilations eventually, i.e. Dr.Kobak said once she is in grade school, he doesn't suspect the need for any more OR face time (so he hopes). He said the first few years are tough but get better over time. Yeah, like the whole VACTERLS thing is supposed to magically get easier once they hit the age of 2 LOL!

Speaking of the girl, she is trying to wake up from a nap so I better run!

Wednesday, June 4, 2008

Just please be over!

Blah, you know the day is going to be bad when your kid is "barking" in her crib at 4am 'cause she hears dogs barking outside....well after that she never really did go back to sleep-which is making for a longggggg day.

I had to go to our urgent care facility today b/c I have been having some unexplained right-sided abdominal pain for almost 3 weeks GYN said everything was fine there and told me to go have someone else check the rest of me out (this was last week). Well, after a bunch of blood work and a KUB later (ha-ha), the doc still doesn't know what is causing the pain. Not the kidneys, not the gallbladder, not the appendix, no tumor, no constipation (he asked if I had used any laxatives lately and I was silently laughing to myself that I use them for my kid all the time. There is a possibility that its a very small deep abdominal hernia (which he doubts) or I pulled a abdominal muscle jogging and that would cause severe stabbing pain. Wrote out a script for NSAID (which I didn't get filled) and said if its still there next week, they will do a CT scan to see what is going on. Lovely. Took almost 4 hours and I had Emma, with no nap, screaming most of the time.

Then this afternoon, while I feel like crap, she:

-finds a bag of cat treats on the table, uses her stool to perch up and grab them, proceeds to shake all over the floor while I am using the bathroom.

-takes her shredded cheese I gave her in a bowl, and with my back turned switching the laundry, shakes the cheese all over the living room floor AFTER I had just vacuumed.

-ran upstairs to look for walgreens form for my calmoseptine I needed to reorder, come back down and she had GONE INTO THE TRASH and took out the bag of chips that were reduced to crumbs and had them all over the kitchen floor. Vacuum comes back out.

-3 major meltdowns over dolly and lovey. After the poop explosion this morning, dolly dolls and lovies had bits of poop over them so I decided to wash them all at once. BIG FREAKING MISTAKE b/c she went cuckobananas. Once they were out of the wash, she got to have 1 doll and 1 soaking wet lovie while I dried the other 2. I tried to distract her by putting her in the pool, but she got mad once she was in the water, chucked all the toys out of the pool and I had enough. She proceeded to scream on the floor for about 20 minutes until I stuck in the barney DVD.

Oh, and don't let me forget to say that her horrible rash is back-but it looks like yeast so I will be adding yet another layer of cream to our routine tonight. I have a feeling the barium from Monday is backing her up so we will be getting a KUB for kicks tomorrow to send up to Dr.Levitt for his take on things.

For not napping, she shows no signs of slowing down. I can't put her to bed yet because our 5 sets of sheets are currently in the dryer- the sheet I just put on last night, you guess it, in the dryer too. She has gone through about 5 sets of sheets in less than 10 days. Unbelievable. I should be happy she is having blow outs but seriously, I hate with a passion, putting on sheets for her bed/crib. The $&$*# bumper is still on and it is such a pain to get the mattress out of the crib (and then the cat and kid will try to lay in the middle of the mattress while I attempt to put the sheets on) and then trying to get the mattress back in the crib is a whole ordeal.

I am in a b@tchy mood right now, and it's Chad's Bday, and I didn't go to lunch b/c I felt bad and from the way our house looks right now, you would never tell that our cleaning lady ( a patient) was just here 3 days ago. It never ends around here :) Drinks for everyone today!

Tuesday, June 3, 2008

Good News!

Yeah, she was looking at the "special juice" in the cup, just for her.....

NO STRICTURE!!!! Our upper GI came along with all the usual dramas but Jeff, the PA was amazing as always (this is our 7th or 8th upper GI since birth and he has done every one of them) and we finally got a nurse who LISTEN to my needs before the test-amazing right?
For those of you who read this and have been spared the "TE" part of VACTERLS, you lie your kid down on this table and the lovely machine above will come down and "hover" over your child, taking real-time pictures of your baby swallowing chalky-apple flavored barium. Emma is positioned on her side first and then on her back. To the left of this machine, you can "see" the action happening. Thankfully for us, it's not a full upper GI per se, we just have to get her to swallow enough barium to coat the esophagus, look at the site of the anastamosis to make sure that all looks good and we are DONE. Don't need to follow it down into the tummy or small bowel.
For about a 10 minute test once it's started, it's about $600 that is billed to the insurance company-and we get about 2-3 a year-ugh right?
I will have to call her GI doc tomorrow to get verbal confirmation but thank God we don't have to take her back to the OR anytime soon-we need to catch a break.